X-Linked Juvenile Retinoschisis Community

This is simply a more actively administered Community for X-Linked Juvenile Retinoschisis. Though a "small" community, it is a strong one none the less and this will help in the connection of people who both live with the disease and the friends/family who are connected as well.

My name is Chauntel and am currently the only admin of this group but we will be adding more (who will then introduce themselves at that time). I am a carrier with 3 sons... 2 without the disease (ages 9 and 2) and one with (age 7). My father is also living with this eye condition. My hopes for this page are to simply offer a platform of awareness to others, a community to share experiences & support and a place to share relevant information.